Thursday, September 22, 2011

Lily MRI Result

Still Clear!!! Thank God!! I was shocked to get a phone call from Lily's pediatrician's office telling me that they had the MRI results. They told me that they think that they had faxed the results right after the MRI -- me and Magnus noticed that the hospital was pretty quiet yesterday so I guess they were able to get out the results right away.

Thanks so much for all your prayers, thoughts and well wishes!!  I hope I am not using up my favors but can you guy's keep my cousin's daughter/my god-daughter, Vivian in your thoughts and prayers?  She is in the NICU and has been pretty stable but developed an intestinal infection and is currently on antibiotics.  The next 24 hours are critical because if the antibiotics don't work they will have to do surgery on her.  She has just been through a critical heart surgery a month prior and is such a fighter but could use positive thoughts and prayers. Also please say a prayer for her parents and her twin sister. Thanks!

Thursday, September 15, 2011

Lily update

For some reason Lily's last MRI, 3 months ago, seemed like it took place longer ago than that. I guess it's been a busy summer. :-) Lily is scheduled to have her next MRI on Wednesday, September 21. Can you guys keep her in your prayers?  We are anxiously awaiting for her oncologist to move her MRIs to every 4 months but her cancer is rare so they want to stay on the cautionary stage and keep scanning her every 3 months.
Lily has officially entered her 'Terrible Twos' and we have nicknamed her 'Bully Lily'.  She is very headstrong and bosses Sammy and Danika around.  I can't complain because it is this same fighting spirit that has allowed her to overcome the obstacles she faces with the side effects of the chemo, tumor and surgery. She continues to do well in her therapies but her therapists tell me that they have to be creative to make her do things since she is showing her stubborness and fighting them to do her exercises.  She even started telling them "I don't wanna" which has been an effort for them to not bust out laughing.  She had a neuro-psych evaluation and her psychologist gave us a couple of things to watch for but he said that the tests he gave her all had average results which was good given that she had brain surgery at such a young age.  He definitely thinks all the therapies she is getting is helping. Thank God for early intervention programs!
As a family, we are getting excited for the CHOC Walk in October! I'm looking forward to our team raising awareness on childhood brain tumors and showing our gratitude for all that CHOC has given to our family.