Tuesday, May 24, 2011

Looking for others

I recently started thinking about other families in the same situation as us, so I began looking on the Internet for infants affected by Glioblastoma Multiforme.  The infant GBM is quite rare so there is not a lot of documented cases available and it can be hard to find the infant cases within the mass of cases in older population.  It took a while but by finding blogs that mentioned other blogs and some rare online article I have managed to find 6 other infants that had been diagnosed with GBM.  I have been able to get in touch with most of the families and received encouragement from their stories.  The children's age range from more than 4 years old to just 7 months, and it looks like the bleak outlook we where initially given might not have been the only truth when some of them has been cancer free so long now that they are considered cured!

With Lily coming up on 2 years since the tumor was removed and still no relapse, we hope and pray that she will join the growing number of children that beat this sickness.

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